Union Government Steps In with Rs 50 Lakh Aid for Infant Battling Rare Genetic Disease
In a heartwarming intervention, the Union government has extended crucial financial support to save the life of 11-month-old Jampala Mangala Punarvika from Kurnool district in Andhra Pradesh. The infant was diagnosed with Spinal Muscular Atrophy (SMA-1), a rare and life-threatening genetic disorder that severely impacts muscle strength and movement.
Viral Appeal and Public Mobilization
The journey to secure help began when Punarvika's father, Suresh Kumar, made a desperate public appeal using the hashtag "Save Punarvika". His plea quickly went viral on social media, galvanizing people from all walks of life across Andhra Pradesh and Telangana. Communities rallied together, organizing a series of fundraising events to gather the necessary funds for the expensive medical treatment required to combat this debilitating condition.
Political Intervention and Medical Expertise
Adding momentum to the cause, Nandyal TDP MP Dr Byreddy Shabari, who is also a qualified medical doctor, intervened decisively. She addressed a detailed letter to the Union Ministry of Health and Family Welfare, highlighting Punarvika's critical condition and the urgent need for financial assistance under the National Policy for Rare Diseases (NPRD-2021) scheme.
Government's Swift Response
Responding promptly to the MP's plea, the Union Ministry of Health and Family Welfare approved financial assistance of up to Rs 50 lakh for Punarvika's treatment. This support falls under the NPRD-2021 scheme, which aims to provide aid for rare diseases that often entail exorbitant medical costs. Dr Byreddy Shabari expressed her gratitude to the Union government and Health Minister JP Nadda for their swift action, emphasizing that the NDA government in the state is committed to ensuring the best possible medical care for the young patient.
Impact and Future Steps
This case underscores the importance of collaborative efforts between the public, political representatives, and government bodies in addressing healthcare challenges. The financial aid is expected to cover advanced treatments that could potentially revive Punarvika, offering hope to her family and setting a precedent for similar cases in the future. The incident also highlights the effectiveness of the NPRD-2021 in providing a safety net for families grappling with rare genetic disorders.
